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MS EDEL TIERNEY

B.A., M.A

Contact Details

Post Doctoral Researcher
Child and Family Research Centre
Institute for Lifecourse and Society
NUI Galway
T: 0035391495736
E: edel.tierney@nuigalway.ie
LinkedIn ResearchGate

Biography

I am a Post -Doctoral Researcher on Children’s Participation in Tusla with the UNESCO Child and Family Research Centre at NUI Galway. This project is part of a wider three year research study being undertaken in the UCFRC on the Development and Mainstreaming Programme for Prevention, Partnership and Family Support (PPFS Programme) Tusla. The Children’s Participation work package is designed to explore the efficacy of a programme of action to embed children and young people’s participation within the Agency. My key research interest lies in the topic of Participation and Participatory Research Methods with particular emphasis on how vulnerable and marginalised groups can participate in decision making about their health care and service provision. The research projects I have worked on have included marginalized groups from across a variety of settings and using a mixture of participatory research methods. My current research focus is on children and young people's participation in Tusla services and how their voices are heard. My other research interest is in Community Participation in Primary Care and involving stakeholders in research projects to inform primary care service delivery. This focus has been underpinned by implementation theory and on how research can inform practice and national policy. I am a member of the Public and Patient Involvement (PPI) research group at UL which has expertise in participatory health research with socially excluded communities and I am a facilitator of a PPI group at NUI Galway who are involved in advising on research funding proposals and research methodologies for university project proposals in development.
My research experience and scholarship crosses the fields of family support and child protection, implementation science, patient and public involvement, participatory research methods and disability and is coupled with a long history of and contribution to voluntary service delivery.

Peer Reviewed Journals

	Year	Publication
	(2016)	'Do primary care professionals agree about progress with implementation of Primary Care Teams: –a cross sectional study' Tierney, E., O’Sullivan, M, Hickey, L, Hannigan, A, May, C , Cullen, W, Kennedy, N Kineen, L & MacFarlane, A (2016) 'Do primary care professionals agree about progress with implementation of Primary Care Teams: –a cross sectional study'. BMC Fam Pract, 17 (1) [ARAN Link] [Details]
	(2016)	'Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study' O’Donnell, P, Tierney, E, O’Carroll, A. Nurse, D. & MacFarlane, A. (2016) 'Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study'. [ARAN Link] [Details]
	(2015)	'Addressing the long term impacts of aphasia: How far does the Conversation Partner Programme go?' Mc Menamin, R., Tierney, E., and MacFarlane, A (2015) 'Addressing the long term impacts of aphasia: How far does the Conversation Partner Programme go?'. Aphasiology, [DOI] [Details]
	(2015)	'Who decides what criteria are important to consider in exploring the outcomes of Conversation Approaches? A Participatory Health Research Study.’' Mc Menamin, R., Tierney, E., and MacFarlane, A (2015) 'Who decides what criteria are important to consider in exploring the outcomes of Conversation Approaches? A Participatory Health Research Study.’'. Aphasiology, [DOI] [Details]
	(2014)	'A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory:' Tierney, E., McEvoy, R., O'Reilly-de Brun, M., de brun, T., Okonkwo, E., Rooney, M., Dowrick, C.F., Rogers, A. and MacFarlane, A. (2014) 'A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory:'. Health Expectations, [DOI] [ARAN Link] [Details]
	(2013)	'Evidence-based training of health professionals to inform families about disability' Harnett, A., Bettendorff, E., Tierney, E., Guerin, S., O Rourke, M. & Hourihane, J. (2013) 'Evidence-based training of health professionals to inform families about disability'. Archives Of Disease In Childhood, 98 (6):413-418 [DOI] [ARAN Link] [Details]
	(2012)	'Relationships of people with learning disabilities in Ireland' Bane, G., Dooher, M., Flaherty, J., Mahon, A., McDonagh, P., Wolfe, M., Deeley, M., Hopkins, R., Minogue, G., Curry, M. Donohoe, B., Tierney, E., Iriarte, E., O Doherty, S. & Shannon, S. (2012) 'Relationships of people with learning disabilities in Ireland'. British Journal Of Learning Disabilities, 40 (2):109-122 [Details]
	(2012)	'Concept of death and perceptions of bereavement' McEvoy, J., McHale, R., & Tierney, E. (2012) 'Concept of death and perceptions of bereavement'. Journal Of Intellectual Disability Research, 6 (2):191-203 [Details]
	(2009)	'Caregiver Perceptions of the Understanding of Death and Need for Bereavement Support in Adults with Intellectual Disabilities' McHale, R., McEvoy, J. & Tierney, E. (2009) 'Caregiver Perceptions of the Understanding of Death and Need for Bereavement Support in Adults with Intellectual Disabilities'. Journal Of Applied Research In Intellectual Disabilities, 22 :574-581 [Details]
	(2009)	'Convention of hope–communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities' Harnett, A., Tierney, E. & Guerin, S. (2009) 'Convention of hope–communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities'. British Journal Of Learning Disabilities, 37 :257-264 [Details]
	(2009)	'Supporting rights through research: development of a national research strategy for intellectual disability- the national federation of voluntary bodies research strategy 2008–2013' Tierney, E. (2009) 'Supporting rights through research: development of a national research strategy for intellectual disability- the national federation of voluntary bodies research strategy 2008–2013'. British Journal Of Learning Disabilities, 37 :323-325 [Details]
	(2006)	'Impact of a 3 Day Training Course on Challenging Behaviour on Staff Cognitive and Emotional Responses' Tierney, E., Quinlan, D. & Hastings, R.P. (2006) 'Impact of a 3 Day Training Course on Challenging Behaviour on Staff Cognitive and Emotional Responses'. Journal Of Applied Research In Intellectual Disabilities, 20 :58-63 [Details]

Published Reports

	Year	Publication
	(2014)	FUSION: Towards a Framework for Community Participation in Primary Care. MacFarlane, A., Tierney, E. and McEvoy R. (2014) FUSION: Towards a Framework for Community Participation in Primary Care. University of Limerick and Health Service Executive, University of Limerick and Health Service Executive. [Details]
	(2012)	Making Your Decisions; An information booklet for people with intellectual disability and their supporters on legal information to enable, support and build capacity to make decisions. National Federation of Voluntary Bodies, CKI and Centre for Disability Law and Policy NUI Galway (2012) Making Your Decisions; An information booklet for people with intellectual disability and their supporters on legal information to enable, support and build capacity to make decisions. National Federation of Voluntary Bodies, CKI and Centre for Disability Law and Policy NUI Galway, National Federation of Voluntary Bodies, CKI and Centre for Disability Law and Policy NUI Galway. [Details]
	(2010)	Informing Families of their Child’s Disability; Development of National Best Practice Guidelines. Harnett, A. & Tierney, E. (2010) Informing Families of their Child’s Disability; Development of National Best Practice Guidelines. National Federation of Voluntary Bodies, National Federation of Voluntary Bodies. [Details]
	(2010)	Informing Families of their Child’s Disability; Best Practice Guidelines-the Cork Implementation Project- Translating Research into Practice. Harnett, A. & Tierney, E. (2010) Informing Families of their Child’s Disability; Best Practice Guidelines-the Cork Implementation Project- Translating Research into Practice. National Federation of Voluntary Bodies, National Federation of Voluntary Bodies. [Details]
	(2010)	Informing Families of their Child’s Disability; Development of National Best Practice Guidelines. Harnett, A. & Tierney, E. (2010) Informing Families of their Child’s Disability; Development of National Best Practice Guidelines. National Federation of Voluntary Bodies, National Federation of Voluntary Bodies. [Details]
	(2010)	Relationships and Supports: A national study done through focus groups by members of the Inclusive Research Network. Inclusive Research Network (2010) Relationships and Supports: A national study done through focus groups by members of the Inclusive Research Network. National Federation of Voluntary Bodies and the National Institute for intellectual Disability, National Federation of Voluntary Bodies and the National Institute for intellectual Disability. [Details]
	(2009)	The Inclusive Research Network: A Participatory Action Research Project. Tierney, E., Curtis, S. & O’Brien P. (2009) The Inclusive Research Network: A Participatory Action Research Project. National Federation of Voluntary Bodies and the National Institute for Intellectual Disability, National Federation of Voluntary Bodies and the National Institute for Intellectual Disability. [Details]
	(2009)	Where we live: A national study done through interviews by members of the Inclusive Research Network. Inclusive Research Network (2009) Where we live: A national study done through interviews by members of the Inclusive Research Network. National Federation of Voluntary Bodies and the National Institute for intellectual Disability, National Federation of Voluntary Bodies and the National Institute for intellectual Disability. [Details]
	(2008)	) Development of a National Research Strategy for Intellectual Disability. Tierney, E. (2008) ) Development of a National Research Strategy for Intellectual Disability. The Frontline of Learning Disability, The Frontline of Learning Disability. [Details]