PPI in Research Conference

PPI in Research Conference 2022

To view the 2022 YouTube playlist, click here. There will be a list below if you want to look at one more specifically. Enjoy!

Health Research Charities Reflect On Their Experiences of PPI - Dr. Avril Kennan, CEO of Health Research Charities Ireland (HRCI) has a conversation with five research charities about their experiences of PPI, progression in their work and challenges they've faced.
Tailoring PPI Approaches - Children & Young People: Lessons Learned - Jenny Preston, Senior Patient and Public Involvement and Engagement Manager in the University of Liverpool discusses the lessons she has learnt throughout her research giving many tips to fellow researchers on involving children and young people in research.
PPI in PhD's - In this session, a panel of PhD candidates and PPI contributors will present their work and discuss the role of PPI in student research. Some of the PPI panels will also be discussing the work from their perspective. Some topics discussed are; research on Spinal Cord repair, adapting PPI to Pre-clinical research, the Financial Costs of Multimorbidity, challenges and benefits of involvement, LGBTI+ youth wellbeing, bringing their experience to the table.
PPI Contributor Panel: My Voice Shaping Research - In this session PPI contributors talk about their journey into Public and Patient Involvement, the importance of contribution and being heard within research, how networking between people with various experiences can be so helpful, the various ways of being, and much more.
Embedding PPI In Research Ethics Structures - Dr Edel Tierney (National Research Officer, TUSLA) and Joe Murphy (PPI Contributor, TUSLA REC Board) talk about Tusla’s efforts to keep child and youth voices at the core of our work programme.
Involving Ethnic Minorities In Research - Anna Papyan, graduate of sociology from Yerevan State University, Armenia, gives lots of guidance on how to involve ethnic minorities in our research. This includes; how to reach out to ethnic minorities, how to help them feel comfortable, and the importance of contacting gatekeepers to get a sense of the community.

PPI in Research Conference 2021

To view the 2021 youtube playlist, click here. There will be a list below if you want to look at one more specifically. Enjoy!

Welcome to the Sixth Annual Patient and Public Involvement (PPI) Conference - A wonderful welcome by Carmel Geoghegan to the 2021 Public and Patient Involvement in Research Conference.
Doing My Bit: One Patient’s Experience of PPI - Listen to Robert Joyce discussing his experience of being an Embedded Patient Researcher in University of Galway. An interesting story of involvement.
Embedding PPI in Medical Device Development in Ireland - Professor Martin O’Halloran and Professor Aoife Lowery discuss medical device development and embedding Public and Patient (PPI) Involvement in this medical device development in Ireland.
'My Voice Shaping Research' with the PPI Contributor Panel - Five of many people around Ireland who are having their voice heard in research. Have a listen to their experiences in life and in research
Learning from Young Adults in Prison - In this discussion, Johanna O’Shea talks about her social work research, and how important it is to learn from the young men in prison, hearing about their experiences.
Development of an ‘Aphasia Accessible Patient Research Experience Survey’ through Co-Production - Listen to Dr. Ciara Shiggins and Co-researcher Ian Duffy presenting the ‘Development of an ‘Aphasia-Accessible Patient Research Experience Survey’ through coproduction with multiple stakeholders’.
Working with Consumers and Other Stakeholders on the Danish Island of Bornholm - Dr. Nana Folmann Hempler and Dr. Sine Gronborg Knusden talk about co-designing human navigation to improve care co-ordination for people with multimorbidity.
Involving Families in the Design of Cancer Services from Belfast to Hanoi - Dr. Olinda Santin discusses her experiences of involving families in the design of cancer services. Seeing all of these perspectives can really help in research.
PPI in PhD Research - BRCA Alterations in the Irish Health Care System - Nikolett Warner talks about Public and Patient Involvement (PPI) in her research on BRCA Alterations in the Irish Health Care System.
Our Involvement with the My Comrade Plus Study - Hearing about the involvement of four people who live with multiple chronic conditions and therefore take many medications. They talk about their involvement in a cross-border research study.
Towards Excellence in Research in Ireland the PPI Ignite Network Professor - Sean Dinneen, the PPI Ignite Network Lead tells us all about research in Ireland and how the PPI Ignite Network plan to make an impact. He closes the 2021 PPI Conference showing everyone how they can get involved in PPI.

PPI in Research Conference 2020

To view the 2021 youtube playlist, click here. There will be a list below if you want to look at one more specifically. Enjoy!

PPI 2020 - The New Influencers: PPI in Policy Making Dr. Fiona Keogh – Dr. Fiona Keogh broadens our view on PPI in research, introducing us to health policy; agenda setting, decision making and policy evaluation. Respect and balancing all expertise throughout the process.
PPI 2020 - The Youth as Researchers Programme: Danielle Kennan, Emma Finnegan and Damian Lydon – We hear about the Youth as Researchers programme, hear from the Youth in this programme, and look at the benefits of young people being involved in research.
PPI 2020 From Hopeless to Hope Anne Lennon Bird – We hear from Anne Lennon Bird who lives with Huntingdon disease, her journey through this disease, experience with research and her impact on this research in Ireland, building relationships.
PPI 2020 - The Hills of Donegal meet MedTech: Dr. Siobhán Kelleher and Kathleen King – Kathleen King and Dr. Siobhán Kelleher talk about PPI in endometriosis research, giving both a personal, contributor and researcher view on this.
PPI 2020 - Croí and the HBCRG, University of Galway Denise Dunne and Dr. Chris Noone – Both Dr. Chris Noone and Denise Dunne discuss their partnership in improving heart and health care, in empowering people to manage their health care, with the help of Public and Patient Involvement.
PPI 2020 - Irish ME/CFS Association & University of Galway Researchers: Orla Ní Comhraí & Dr. John Cullinan We hear from John Cullinan and Orla Ní Comhraí about their experience of working together, what their research process was like and research findings.
PPI 2020 - COVID 19: PPI, Now More than Ever! Prof Sean Dinneen – Prof. Sean Dineen closes the conference, reviewing the brilliant presentations. We hear about challenges but also the importance of PPI in the challenging time of Covid-19 pandemic, including everyone in today's research and management of this 'new life'.

PPI in Research Conference 2019

To view the 2019 youtube playlist, click here. There will be a list below if you want to look at one more specifically. Enjoy!

PPI Conference Opening Address - An tOllamh Ciarán Ó hÓgartaigh, University of Galway President opened the 4^th National Public and Patient Involvement in Research Conference: 'Progressing Together'.
Derek Stewart - Sustaining PPI, Getting The Balance Right - Derek Stewart, OBE, spoke about the importance using your voice, of sustaining PPI and getting the balance right.
Dr. Emma Dorris - 'PPI in Pre-Clinical and Basic Life Sciences Research' - Dr Emma Dorris, UCD discussed 'PPI in preclinical and basic life sciences research' and spoke about the PPI initiative in in UCD titled 'The Patient Voice in Arthritis Research'
Dr. Helen Rochford-Brennan - 'Can You Hear Me, Are You Listening?' - Dr Helen Rochford Brennan, advocate and person living with dementia spoke about her journey in community activism, PPI and national and international research. "diversity is being invited to the party, inclusion is being asked to dance”
Lanie Bruce, Mairéad Fennessy and Barbara Riddell - HSE Patient Narrative Project - Lanie, Mairéad and Barbara spoke about the HSE Patient Narrative Project 'Your Voice Matters'. Lanie also discussed the Wexford COPD peer support group and her role as chair.
Paul Ryan- 'My Path to PPI' - Paul Ryan from the Irish Neonatal Health Alliance spoke about his path to PPI at the conference. Paul spoke about the reality of life with a premature baby and the importance of being a voice for patients who can't speak for themselves.
Ciara Duffy and Cameron Keighron in Conversation with Dr. Bláthín Casey - Ciara and Cameron spoke with Dr Bláthín Casey the D1 Now programme manager about their five year PPI journey with the Young Adult Panel who aim to improve health outcomes among young adults with Type 1 diabetes in Ireland.
Lightning Talks with Feedback - In this session, researchers and a PPI contributor outline their involvement approaches and methodologies, and a panel of experienced PPI researchers/PPI contributors give feedback on the approaches.
Prof. Carolyn Jenkins- Community Engaged Scholars Programme - US and Ireland - Professor Carolyn Jenkins, Medical University of South Carolina, spoke about the Community Engaged Scholars Programme, an initiative now in its 9th year.
Sharon Conway- Community Engaged Scholars Programme - US and Ireland - Sharon Conway spoke about the Irish Pilot of the Community Engaged Scholars Programme (CES-P) at the PPI in Research Conference. Sharon is the Programme Coordinator for the CES-P at PPI Ignite @ University of Galway
Prof. Sean Dinneen - Closing comments, Fourth National PPI in Research Conference - Professor Sean Dinneen,the lead of the PPI Ignite @ University of Galway programme, gave the closing comments at the Fourth Annual PPI in Research Conference.

PPI in Research Conference 2018

To view the 2018 youtube playlist, click here. There will be a list below if you want to look at one more specifically. Enjoy!

PPI 2018 (Welcome) – Professor Andrew Murphy welcomes everyone to the 3^rd annual PPI in Research Conference
PPI 2018 (Austin O’ Carroll) – Austin O Carroll gives great insight into his work in PPI as a GP
PPI 2018 (Wendy Costello) – Wendy Costello talks about her experience caring for her child with Juvenile Arthritis and her role creating the Irish Children’s Arthritis Network
PPI 2018 (Paddy McGowan) – Paddy McGowan discusses his time in the mental health system and becoming a mental health human rights advocate
PPI 2018 (Sean Crosson & Conn Holohon) - Sean Crosson and Conn Holohan talk about participatory video and giving people a voice through a video framework
PPI 2018 (Sean Dineen) – Professor Sean Dinneen introduces the PPI Ignite Network @ University of Galway, working in partnership and making an impact
PPI 2018 (Closing) – Edel Murphy discusses the stigma of labels, Dr. Oonagh Meade discusses PPI in grant applications, Dr. Tim Delaney discusses Spot The Difference qualitative research versus PPI and Dr. Fiona Keogh summarises the day.