Patient and Public Involvement in Research (PPI)

Welcome to the patients and public section of our website. Here you will find information and links to content aimed specifically at patients, carers and other members of the public.

Clinical research would not be successful without the kindness of patients and the public who take part.  There are many different kinds of health and social care research, and many crucial roles throughout the research process that you can get involved with. We need the opinions and personal experience of members of the public, patients and carers to add to the information we receive from clinical research studies. Sharing your experience to help improve the care for future patients is extremely rewarding.

Public Patient Involvement (PPI) Activities at the CRDO

The CRDO is a Member of the National PPI in Clinical Research Working Group

IPPOSI – The Irish Platform for Patient Organisations, Science and Industry – is a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health policy and innovation. 

IPPOSI has launched an information campaign about clinical trials that aims to inform patients and the general public about taking part in clinical trials

Guides on Patient and Public Involvement in HSE Research

1. Guide No. 8 Patient and Public Involvement in HSE Research

2. Guide No. 8 Cost and Budgeting for Patient and Public Involvement in HSE Research

3. Changing the narrative: patients, those with lived experience, carers, families as knowledge creators and knowledge users

Useful Links

Information on the PPI Ignite network and other useful resources.