FAQs
Frequently asked questions
Explain more about...
Why is there a registry for Multiple Myeloma in Ireland ?
Blood cancers such as Multiple Myeloma vary between patients. By combining clinical and biological data, this registry enables better research to improve diagnosis, treatment, and outcomes.
What happens if you continue with this online registration process ?
Your will take part as a volunteer
Your may withdraw at any time
Your medical care will not be affected
You will provide contact details
You may answer additional questions
The team may contact you regarding research participation
Is there a video explaining how the registry works ?
Yes, click here to open the video on the home page of this website. Multiple Myeloma Registry Ireland
Who runs the registry ?
The Multiple Myeloma Registry Ireland is a joint collaboration between the Royal College of Surgeons and the University of Galway. This registry is led by Professor Eva Szegezdi (Director of BCNI) in collaboration with Professor Siobhán Glavey, Consultant Haematologist at Beaumont Hospital. BCNI is a national collaborative network working with hospitals, researchers, and the Blood Cancer Biobank Ireland to advance blood cancer research.
How do I contact the registry to find out more about participating in the registry ?
Click the link below to open a form to give your contact details to the registry and our research team will follow-up by contacting you in person.
Link to give your contact details: https://nuigalway.questionpro.eu/t/AB3vD4XZB3wjhx
Where can I sign up to give consent to participate in the registry ?
Click the link below to open an online form, which first verifies your eligibility to participate in the registry, followed by providing details and your consent to get involved in the registry.
Link to give your consent: 
If I change my mind, can I withdraw from the registry ?
Yes, of course you can withdraw from this voluntary registry at anytime. Simply email your request to xxx and this will be arranged without delay.
Is information I give protected data ?
Yes, your data will be protected in accordance data protection law, including GDPR Regulations.
